Saturday, April 26, 2014

Perhaps dumping my Dr wasn't the best idea :(

I haven't posted much. I'm just not sure where to go from here. I wanted to believe that going gluten free was going to help the RA pain, it hasn't. It has definitely helped other areas, but not the RA pain. I wanted to believe getting rid of the extra medicines would get rid of some of the foggy "side effects" and help me stick to my affirmation that the Dr was just prescribing "roulette" style, and to some degree I guess I am right there. I don't necessarily feel any better than I would have with the meds, so adding them back in wouldn't really "cure" anything. But, I have to admit that something has to be done I suppose. I can't keep up with the painful joints & muscles. I want to live a normal life, but something as simple as a long walk, or an hour gardening leaves me achy and sore for days. How is that possible? I just keep moving and doing what I want, but I'm grumpy and sore and sad because of the pain. For now I'm just trying to figure out where to go from here....
I don't know that anyone but me is actually reading this blog, so I guess I'm just getting the idea out there for myself. I'll update myself when I decide where to go next ;)
For now though I have a show coming up in 1 week and I am not ready, so off to the sewing room I go for the weekend.


  1. I sew full time and my hands ache everyday! I feel your pain. :(

  2. I've been reading along here and there but don't think I've ever commented. I was diagnosed in 2006 with RA. I fought the doctor quite a bit at first with what meds were being prescribed as we were trying for baby #4 at the time. After having an early miscarriage I swore off all drugs and happily got pregnant with our last child a couple of months later. My RA was in remission while pregnant but came back back about a month after I gave birth. I was prescribed Sulfasalazine since I was breastfeeding and that's what I'm still on today. Once I stopped breastfeeding, my rheumatologist wanted to put me on methotrexate but since the sulfasalazine seems to be doing the trick I refused. I suspect that I have a mild case of RA. As long as I take my meds on a regular basis, the symptoms are pretty much under control. If I skip a time or two, I definitely feel it. Luckily, there's no damage so far to my joints. It's hard trying to find what works for you. I hope you're able to find a way to manage the pain and discomfort so that you can get back to enjoying your life.